Tonight on Dateline is “Born Small” a look at how Australian researchers are trialing a new drug found to increase growth in children with a common form of dwarfism.
Achondroplasia, the most common form of dwarfism, is a rare genetic disorder that impacts bone growth, affecting around 1 in 25,000 children worldwide. People with achondroplasia can face a lifetime of health complications, including spinal column narrowing, spinal cord compression, and bowed legs.
The drug vosoritide – when injected once a day in young children – could reverse the effects of dwarfism and allow children to grow to average height.
Daisy’s son Casper has achondroplasia and was faced with the decision to be part of the vosoritide drug trial, which could change his expected height.
9:30pm tonight on SBS.